In this subtitle the following words have the meanings indicated. “Advisory Committee” means the Parkinson’s Disease Registry Advisory Committee. “Parkinson’s disease” means a chronic and progressive disorder resulting from deficiency of the neurotransmitter dopamine as the consequence of specific degenerative changes in the area of the brain called the basal ganglia, characterized by tremors at rest, slow movements, muscle rigidity, stooped posture, and unsteady or shuffling gait.

There is a Parkinson’s Disease Registry Advisory Committee in the Department.

The Advisory Committee shall: Assist in the development and implementation of a State Parkinson’s Disease Registry; Determine what data shall be collected and be stored in a State Parkinson’s Disease Registry and the methods to ensure the privacy and confidentiality of data collected and stored in the registry; Advise the Department on Parkinson’s disease and maintaining a State Parkinson’s Disease Registry; and Consult with entities that may be able to collect data and work in partnership with the federal Centers for Disease Control and Prevention to aid the federal Centers for Disease Control and Prevention in creating a national Parkinson’s Disease Registry. Entities that may be consulted under subsection (a)(4) of this section include: The State–designated health information exchange; Nonprofit organizations; and Colleges or universities. The Secretary shall appoint individuals to serve on the Advisory Committee, including: A neurologist; A movement disorder specialist; A primary care provider; A physician informaticist; A patient with Parkinson’s disease; A public health professional; A population health researcher familiar with disease registries; A Parkinson’s disease researcher; and Any other individuals the Secretary determines are necessary. The Secretary shall establish: The duration of term limits for members of the Advisory Committee; Rules and procedures for conducting business of the Advisory Committee; and Any other rules necessary for the Advisory Committee to function effectively. Beginning July 1, 2023, the Advisory Committee shall meet at least quarterly.

The Department, in collaboration with the State–designated health information exchange, shall establish and maintain a publicly accessible website that has the following information in a downloadable format: The incidence of Parkinson’s disease in the State; and To the extent possible, the incidence of Parkinson’s disease disaggregated based on: Age, including age of diagnosis; Gender; Sex; Race; Ethnicity; and Cases by county. The website required under subsection (a) of this section shall: Include the data available for the 5–year period ending on September 30, 2023; and Be updated on or before January 1 each year, to include any newly available data.